New Symptom

Went to TCH today for followup with the hematologist. Last time, he was very carefree and not very proactive with Baby H because it seemed as she was getting better on her own (hence the 5-week later followup). That changed today.

It seems that since the ultrasound 3 or 4 weeks ago, her liver is now "significantly enlarged." What this means, I have no clue. He seemed pretty concerned and wants us to see a colleague of his, a gastroenterologist, at TCH next week. He was stumped as to what was causing the low platelets (which dropped from 120 to 107 since last week) and the enlarged spleen, but maybe this enlarged liver can shed some light on things.

I asked him if we are dealing with something life-threatening at this point. He said "No." Then I said, do we need answers in the upcoming days, weeks, or months. He said "weeks."

So frustrating...not to mention that I spent over 3-1/2 hours there today between the first blood draw (which Baby H screamed) which was a heelprick to waiting to see the doc and then waiting another 90 minutes to get more blood work intravenously (to check liver function and related things.).