What to do...

We got the ultrasound and Doppler results. Her spleen IS enlarged (no, duh) and is 8 cm, which according to the report, is 2 standard deviations above the upper end of normal. Not sure how much a standard deviation is though. I need to contact the hospital she was born at to get a copy of the original ultrasound report so the docs can compare the growth factor between then and now. There is NO portal vein hypertension, and her blood flow to/from the spleen looks normal. There is some slight restriction on her hepatic artery that is "nonspecific" but that doesn't seem to be a concern right now.

Also, Baby H's platelets are at 94, which is just 1 point higher than it was at the last visit on the 13th. But "at least it didn't go down!"

So, after talking to Dr. B, he wanted me to make an appointment with Dr. M, the hematologist, in two weeks and see him back in 4 weeks. The next day, Dr. M calls me with the results of the ultrasound not knowing that Dr. B had pulled them up the day before and let me know the results. He told me that he wants to see Baby H in SIX weeks and to follow up with Dr. B in 3 weeks. I called Dr. B back with that info, and Dr. B wasn't too pleased because he wants answers sooner than later because since we have ruled out almost all acute reasons for the enlarged spleen (infection, etc.,), he is concerned that it may be metabolic and require more invasive testing (like biopsies, etc.). But he agreed to go with the flow for now.

I called and made an appointment with Dr. M on 9/25 -- which will actually be the 4-week mark instead of 6-week mark. We'll see Dr. B the week before that just to get another platelet count to see if there is any change.

I have more to share (the fun stuff), but I'm exhausted! I'll be back later to share what has been going on with my THREE kids :)