64. That's it. Her platelet count only went up 2,000. The docs were hoping to see at least in the 70s this morning. "At least it didn't go down." They are going to test her again tomorrow morning. If she can't get into the 80s by Friday, they are going to "sit down and reevaluate" the situation including possibly another IVIg treatment or perhaps a platelet transfusion from me.
I didn't share this yesterday because I didn't want to get my hopes up, but yesterday, the docs were so excited with the 21-point jump that they told us that it looked like we could bring Baby H home either today or tomorrow -- expecting another big jump today. They even said to make an appointment with Dr. B (our pediatrician) for Friday for followup. They never said this was going to happen for sure, but they were "guardedly optimistic." In the back of my mind, with our history of infertility and adoption, I really wanted to believe it, but both DH and I had the mentality of "we'll believe it when we see it." Sure enough, this morning's numbers changed things...
They are going to release her when she gets to 80 to 85. So, if for some miracle (which I hope God is listening) she can get to 80 by Friday, they will release her that afternoon. We are grateful they are lowering the threshold from 100, their initial release level. We aren't sure why, but one of the NPs made the comment about knowing DH & I will keep her safe and take it easy with her until she gets up higher...I guess DH & I going to the NICU 3 to 6 hours a day, every day, shows them how much we care about her.
Fortunately, I was able to be there for her 5 PM feeding, thanks to Eduoard fizzling out on us. I only spent less than 90 minutes there, but that was good enough for me. Today, the NICU is closed from 2 PM to 5 PM (which is her two feeding times, ironically) in addition to their normal shift-change closure, so my time is going to be limited again today. But that's okay, I'm going to head out in a little bit to spend the morning with her.
Oh yeah, more positive news, her spleen is looking much better. It is not as hard and enlarged as it was, and the NP told DH this morning that it has even started softening (the way it should be). So, perhaps, whatever the situation was, the spleen needed time to repair itself which MAY have something to do with her platelet count situation.
I hope we can at least get into the 70s tomorrow (the 80s would be better, but I'm not going to push it!).
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5 comments:
Sounds good about her spleen and ITA that whatever she has must be related and her body needs time to adjust and fight these things. I hope with all my heard she comes this week! Hugs!
I'm just convinced that you aren't able to get any of your children home easily... no matter the method! It sounds like Baby H is doing her best to get herself home. We're all praying too.
I'm so glad that you got to see her last night....
{{{hugs}}}
I'm so grateful we're continuing to see increases, even though they're smaller than we'd like. I pray that she continues to make great strides and that you continue to have lots of time with her.
I've been out of town (and away from internet connections), so I'm just now learning about all of H's issues. Yikes! I'm glad you've had some positive gains and hope that her numbers improve to the most optomistic projections and that she's home very, very soon.
Many many prayers for H and you! I hope her numbers rise quickly! Thinking of you all the time!
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